2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.
Identifieur interne : 000329 ( Main/Exploration ); précédent : 000328; suivant : 0003302018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.
Auteurs : Bianca Bech [Oman] ; Jette Primdahl [Danemark] ; Astrid Van Tubergen [Pays-Bas] ; Marieke Voshaar [Pays-Bas] ; Heidi A. Zangi [Norvège] ; Lurdes Barbosa [Portugal] ; Carina Boström [Suède] ; Boryana Boteva [Bulgarie] ; Francesco Carubbi [Italie] ; Françoise Fayet [France] ; Ricardo J O. Ferreira [Portugal] ; Kirsten Hoeper [Allemagne] ; Agnes Kocher [Suisse] ; Marja Leena Kukkurainen [Finlande] ; Vivienne Lion [Autriche] ; Patricia Minnock [Irlande (pays)] ; Antonella Moretti [Italie] ; Mwidimi Ndosi [Royaume-Uni] ; Milena Pavic Nikolic [Slovénie] ; Michael Schirmer [Autriche] ; Hana Smucrova [République tchèque] ; Jenny De La Torre-Aboki [Espagne] ; Jennifer Waite-Jones [Royaume-Uni] ; Yvonne Van Eijk-Hustings [Pays-Bas]Source :
- Annals of the rheumatic diseases [ 1468-2060 ] ; 2020.
Descripteurs français
- KwdFr :
- Accessibilité des services de santé (MeSH), Arthrite (soins infirmiers), Arthrite psoriasique (soins infirmiers), Formation continue infirmier (MeSH), Humains (MeSH), Pelvispondylite rhumatismale (soins infirmiers), Polyarthrite rhumatoïde (soins infirmiers), Rhumatologie (MeSH), Rôle de l'infirmier (MeSH), Satisfaction des patients (MeSH), Spondylarthropathies (soins infirmiers), Spécialités en soins infirmiers (MeSH), Télémédecine (MeSH), Éducation du patient comme sujet (MeSH).
- MESH :
- soins infirmiers : Arthrite, Arthrite psoriasique, Pelvispondylite rhumatismale, Polyarthrite rhumatoïde, Spondylarthropathies.
- Accessibilité des services de santé, Formation continue infirmier, Humains, Rhumatologie, Rôle de l'infirmier, Satisfaction des patients, Spécialités en soins infirmiers, Télémédecine, Éducation du patient comme sujet.
English descriptors
- KwdEn :
- Arthritis (nursing), Arthritis, Psoriatic (nursing), Arthritis, Rheumatoid (nursing), Education, Nursing, Continuing (MeSH), Health Services Accessibility (MeSH), Humans (MeSH), Nurse's Role (MeSH), Patient Education as Topic (MeSH), Patient Satisfaction (MeSH), Rheumatology (MeSH), Specialties, Nursing (MeSH), Spondylarthropathies (nursing), Spondylitis, Ankylosing (nursing), Telemedicine (MeSH).
- MESH :
Abstract
To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory arthritis (CIA) using the most up to date evidence. The EULAR standardised operating procedures were followed. A task force of rheumatologists, health professionals and patients, representing 17 European countries updated the recommendations, based on a systematic literature review and expert consensus. Higher level of evidence and new insights into nursing care for patients with CIA were added to the recommendation. Level of agreement was obtained by email voting. The search identified 2609 records, of which 51 (41 papers, 10 abstracts), mostly on rheumatoid arthritis, were included. Based on consensus, the task force formulated three overarching principles and eight recommendations. One recommendation remained unchanged, six were reworded, two were merged and one was reformulated as an overarching principle. Two additional overarching principles were formulated. The overarching principles emphasise the nurse's role as part of a healthcare team, describe the importance of providing evidence-based care and endorse shared decision-making in the nursing consultation with the patient. The recommendations cover the contribution of rheumatology nursing in needs-based patient education, satisfaction with care, timely access to care, disease management, efficiency of care, psychosocial support and the promotion of self-management. The level of agreement among task force members was high (mean 9.7, range 9.6-10.0). The updated recommendations encompass three overarching principles and eight evidence-based and expert opinion-based recommendations for the role of the nurse in the management of CIA.
DOI: 10.1136/annrheumdis-2019-215458
PubMed: 31300458
Affiliations:
- Allemagne, Autriche, Bulgarie, Danemark, Espagne, Finlande, France, Irlande (pays), Italie, Norvège, Oman, Pays-Bas, Portugal, Royaume-Uni, République tchèque, Slovénie, Suisse, Suède
- Angleterre, Auvergne (région administrative), Auvergne-Rhône-Alpes, Basse-Saxe, Bohême centrale, Canton de Berne, Overijssel, Sofia-ville (oblast), Svealand, Tyrol (Land), Yorkshire-et-Humber, Østlandet
- Berne, Clermont-Ferrand, Enschede, Hanovre, Innsbruck, Leeds, Oslo, Prague, Sofia, Stockholm
- Université de Leeds, Université de Twente, Université de médecine d'Innsbruck
Links toward previous steps (curation, corpus...)
Le document en format XML
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Zangi</name><affiliation wicri:level="3"><nlm:affiliation>National Advisory Unit on Rehabilitation in Rheumatology, Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>National Advisory Unit on Rehabilitation in Rheumatology, Department of Rheumatology, Diakonhjemmet Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Barbosa, Lurdes" sort="Barbosa, Lurdes" uniqKey="Barbosa L" first="Lurdes" last="Barbosa">Lurdes Barbosa</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Department of Rheumatology, Hospital Garcia de Orta, Almada</wicri:regionArea><wicri:noRegion>Almada</wicri:noRegion></affiliation></author><author><name sortKey="Bostrom, Carina" sort="Bostrom, Carina" uniqKey="Bostrom C" first="Carina" last="Boström">Carina Boström</name><affiliation wicri:level="3"><nlm:affiliation>Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm</wicri:regionArea><placeName><settlement type="city">Stockholm</settlement><region nuts="2">Svealand</region></placeName></affiliation><affiliation wicri:level="3"><nlm:affiliation>Functional Area Occupational Therapy & Physiotherapy, Allied Health Professionals Function, Karolinska University Hospital, Stockholm, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Functional Area Occupational Therapy & Physiotherapy, Allied Health Professionals Function, Karolinska University Hospital, Stockholm</wicri:regionArea><placeName><settlement type="city">Stockholm</settlement><region nuts="2">Svealand</region></placeName></affiliation></author><author><name sortKey="Boteva, Boryana" sort="Boteva, Boryana" uniqKey="Boteva B" first="Boryana" last="Boteva">Boryana Boteva</name><affiliation wicri:level="3"><nlm:affiliation>Bulgarian Organisation for People with Rheumatic Diseases (BOPRD), www.revmatologia.org, Sofia, Bulgaria.</nlm:affiliation><country xml:lang="fr">Bulgarie</country><wicri:regionArea>Bulgarian Organisation for People with Rheumatic Diseases (BOPRD), www.revmatologia.org, Sofia</wicri:regionArea><placeName><settlement type="city">Sofia</settlement><region nuts="2">Sofia-ville (oblast)</region></placeName></affiliation></author><author><name sortKey="Carubbi, Francesco" sort="Carubbi, Francesco" uniqKey="Carubbi F" first="Francesco" last="Carubbi">Francesco Carubbi</name><affiliation wicri:level="1"><nlm:affiliation>Rheumatology Unit, Department of Biotechnological and Applied Clinical Science, School of Medicine, University of L'Aquila, L'Aquila, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Rheumatology Unit, Department of Biotechnological and Applied Clinical Science, School of Medicine, University of L'Aquila, L'Aquila</wicri:regionArea><wicri:noRegion>L'Aquila</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, ASL1 Avezzano-Sulmona-L'Aquila, L'Aquila, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Department of Medicine, ASL1 Avezzano-Sulmona-L'Aquila, L'Aquila</wicri:regionArea><wicri:noRegion>L'Aquila</wicri:noRegion></affiliation></author><author><name sortKey="Fayet, Francoise" sort="Fayet, Francoise" uniqKey="Fayet F" first="Françoise" last="Fayet">Françoise Fayet</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Hôpital Gabriel Montpied, Clermont-Ferrand, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Rheumatology, Hôpital Gabriel Montpied, Clermont-Ferrand</wicri:regionArea><placeName><region type="region">Auvergne-Rhône-Alpes</region><region type="old region">Auvergne (région administrative)</region><settlement type="city">Clermont-Ferrand</settlement></placeName></affiliation></author><author><name sortKey="Ferreira, Ricardo J O" sort="Ferreira, Ricardo J O" uniqKey="Ferreira R" first="Ricardo J O" last="Ferreira">Ricardo J O. Ferreira</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra</wicri:regionArea><wicri:noRegion>Coimbra</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Health Sciences Research Unit: Nursing (UICiSA:E), Nursing School of Coimbra, Coimbra, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Health Sciences Research Unit: Nursing (UICiSA:E), Nursing School of Coimbra, Coimbra</wicri:regionArea><wicri:noRegion>Coimbra</wicri:noRegion></affiliation></author><author><name sortKey="Hoeper, Kirsten" sort="Hoeper, Kirsten" uniqKey="Hoeper K" first="Kirsten" last="Hoeper">Kirsten Hoeper</name><affiliation wicri:level="3"><nlm:affiliation>Clinic for Immunology and Rheumatology, Hannover Medical School, Hannover, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Clinic for Immunology and Rheumatology, Hannover Medical School, Hannover</wicri:regionArea><placeName><region type="land" nuts="2">Basse-Saxe</region><settlement type="city">Hanovre</settlement></placeName></affiliation></author><author><name sortKey="Kocher, Agnes" sort="Kocher, Agnes" uniqKey="Kocher A" first="Agnes" last="Kocher">Agnes Kocher</name><affiliation wicri:level="1"><nlm:affiliation>Institute of Nursing Science (INS), Department of Public Health (DPH), University of Basel, Basel, Switzerland.</nlm:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>Institute of Nursing Science (INS), Department of Public Health (DPH), University of Basel, Basel</wicri:regionArea><wicri:noRegion>Basel</wicri:noRegion></affiliation><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Immunology and Allergology, Inselspital University Hospital Bern, Bern, Switzerland.</nlm:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>Department of Rheumatology, Immunology and Allergology, Inselspital University Hospital Bern, Bern</wicri:regionArea><placeName><settlement type="city">Berne</settlement><region type="région" nuts="3">Canton de Berne</region></placeName></affiliation></author><author><name sortKey="Kukkurainen, Marja Leena" sort="Kukkurainen, Marja Leena" uniqKey="Kukkurainen M" first="Marja Leena" last="Kukkurainen">Marja Leena Kukkurainen</name><affiliation wicri:level="1"><nlm:affiliation>Lahti University of Applied Sciences, Faculty of Social and Health Care, Lahti, Finland.</nlm:affiliation><country xml:lang="fr">Finlande</country><wicri:regionArea>Lahti University of Applied Sciences, Faculty of Social and Health Care, Lahti</wicri:regionArea><wicri:noRegion>Lahti</wicri:noRegion></affiliation></author><author><name sortKey="Lion, Vivienne" sort="Lion, Vivienne" uniqKey="Lion V" first="Vivienne" last="Lion">Vivienne Lion</name><affiliation wicri:level="4"><nlm:affiliation>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck, Austria.</nlm:affiliation><country xml:lang="fr">Autriche</country><wicri:regionArea>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck</wicri:regionArea><orgName type="university">Université de médecine d'Innsbruck</orgName><placeName><settlement type="city">Innsbruck</settlement><region nuts="2" type="region">Tyrol (Land)</region></placeName></affiliation></author><author><name sortKey="Minnock, Patricia" sort="Minnock, Patricia" uniqKey="Minnock P" first="Patricia" last="Minnock">Patricia Minnock</name><affiliation wicri:level="1"><nlm:affiliation>Rheumatic Musculoskeletal Disease Unit, Our Lady's Hospice and Care Services, Dublin, Ireland.</nlm:affiliation><country xml:lang="fr">Irlande (pays)</country><wicri:regionArea>Rheumatic Musculoskeletal Disease Unit, Our Lady's Hospice and Care Services, Dublin</wicri:regionArea><wicri:noRegion>Dublin</wicri:noRegion></affiliation></author><author><name sortKey="Moretti, Antonella" sort="Moretti, Antonella" uniqKey="Moretti A" first="Antonella" last="Moretti">Antonella Moretti</name><affiliation wicri:level="1"><nlm:affiliation>Clinica Reumatologica, Ospedale C. Urbani, Università Politecnica delle Marche, Jesi (An), Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Clinica Reumatologica, Ospedale C. Urbani, Università Politecnica delle Marche, Jesi (An)</wicri:regionArea><wicri:noRegion>Jesi (An)</wicri:noRegion></affiliation></author><author><name sortKey="Ndosi, Mwidimi" sort="Ndosi, Mwidimi" uniqKey="Ndosi M" first="Mwidimi" last="Ndosi">Mwidimi Ndosi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Nursing and Midwifery, University of the West of England, Bristol, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Nursing and Midwifery, University of the West of England, Bristol</wicri:regionArea><wicri:noRegion>Bristol</wicri:noRegion></affiliation></author><author><name sortKey="Pavic Nikolic, Milena" sort="Pavic Nikolic, Milena" uniqKey="Pavic Nikolic M" first="Milena" last="Pavic Nikolic">Milena Pavic Nikolic</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rhematology, University Medical Centre Ljubljana, Ljubljana, Slovenia.</nlm:affiliation><country xml:lang="fr">Slovénie</country><wicri:regionArea>Department of Rhematology, University Medical Centre Ljubljana, Ljubljana</wicri:regionArea><wicri:noRegion>Ljubljana</wicri:noRegion></affiliation></author><author><name sortKey="Schirmer, Michael" sort="Schirmer, Michael" uniqKey="Schirmer M" first="Michael" last="Schirmer">Michael Schirmer</name><affiliation wicri:level="4"><nlm:affiliation>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck, Austria.</nlm:affiliation><country xml:lang="fr">Autriche</country><wicri:regionArea>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck</wicri:regionArea><orgName type="university">Université de médecine d'Innsbruck</orgName><placeName><settlement type="city">Innsbruck</settlement><region nuts="2" type="region">Tyrol (Land)</region></placeName></affiliation></author><author><name sortKey="Smucrova, Hana" sort="Smucrova, Hana" uniqKey="Smucrova H" first="Hana" last="Smucrova">Hana Smucrova</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rehabilitation, Institute of Rheumatology, Prague, Czech Republic.</nlm:affiliation><country xml:lang="fr">République tchèque</country><wicri:regionArea>Department of Rehabilitation, Institute of Rheumatology, Prague</wicri:regionArea><placeName><settlement type="city">Prague</settlement><region type="région" nuts="2">Bohême centrale</region></placeName></affiliation></author><author><name sortKey="De La Torre Aboki, Jenny" sort="De La Torre Aboki, Jenny" uniqKey="De La Torre Aboki J" first="Jenny" last="De La Torre-Aboki">Jenny De La Torre-Aboki</name><affiliation wicri:level="1"><nlm:affiliation>Day Hospital Unit, Alicante General and University Hospital, Alicante, Spain.</nlm:affiliation><country xml:lang="fr">Espagne</country><wicri:regionArea>Day Hospital Unit, Alicante General and University Hospital, Alicante</wicri:regionArea><wicri:noRegion>Alicante</wicri:noRegion></affiliation></author><author><name sortKey="Waite Jones, Jennifer" sort="Waite Jones, Jennifer" uniqKey="Waite Jones J" first="Jennifer" last="Waite-Jones">Jennifer Waite-Jones</name><affiliation wicri:level="4"><nlm:affiliation>School of Healthcare, University of Leeds, Leeds, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>School of Healthcare, University of Leeds, Leeds</wicri:regionArea><orgName type="university">Université de Leeds</orgName><placeName><settlement type="city">Leeds</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Yorkshire-et-Humber</region></placeName></affiliation></author><author><name sortKey="Van Eijk Hustings, Yvonne" sort="Van Eijk Hustings, Yvonne" uniqKey="Van Eijk Hustings Y" first="Yvonne" last="Van Eijk-Hustings">Yvonne Van Eijk-Hustings</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, Maastricht, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, Maastricht</wicri:regionArea><wicri:noRegion>Maastricht</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2020">2020</date><idno type="RBID">pubmed:31300458</idno><idno type="pmid">31300458</idno><idno type="doi">10.1136/annrheumdis-2019-215458</idno><idno type="wicri:Area/Main/Corpus">000423</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">000423</idno><idno type="wicri:Area/Main/Curation">000423</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">000423</idno><idno type="wicri:Area/Main/Exploration">000423</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.</title><author><name sortKey="Bech, Bianca" sort="Bech, Bianca" uniqKey="Bech B" first="Bianca" last="Bech">Bianca Bech</name><affiliation wicri:level="1"><nlm:affiliation>Center for Rheumatology and Spine Diseases, Centre of Head and Orthopaedics, Rigshospitalet - Glostrup, Glostrup, Denmark biancabech@gmail.com.</nlm:affiliation><country wicri:rule="url">Oman</country><wicri:regionArea>Center for Rheumatology and Spine Diseases, Centre of Head and Orthopaedics, Rigshospitalet - Glostrup, Glostrup</wicri:regionArea><wicri:noRegion>Glostrup</wicri:noRegion></affiliation></author><author><name sortKey="Primdahl, Jette" sort="Primdahl, Jette" uniqKey="Primdahl J" first="Jette" last="Primdahl">Jette Primdahl</name><affiliation wicri:level="1"><nlm:affiliation>Danish Hospital for Rheumatic Diseases, University Hospital of Southern Denmark, Sønderborg, Denmark.</nlm:affiliation><country xml:lang="fr">Danemark</country><wicri:regionArea>Danish Hospital for Rheumatic Diseases, University Hospital of Southern Denmark, Sønderborg</wicri:regionArea><wicri:noRegion>Sønderborg</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Regional Health Research, University of Southern Denmark, Odense, Denmark.</nlm:affiliation><country xml:lang="fr">Danemark</country><wicri:regionArea>Department of Regional Health Research, University of Southern Denmark, Odense</wicri:regionArea><wicri:noRegion>Odense</wicri:noRegion></affiliation></author><author><name sortKey="Van Tubergen, Astrid" sort="Van Tubergen, Astrid" uniqKey="Van Tubergen A" first="Astrid" last="Van Tubergen">Astrid Van Tubergen</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, Maastricht, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, Maastricht</wicri:regionArea><wicri:noRegion>Maastricht</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>CAPHRI Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>CAPHRI Care and Public Health Research Institute, Maastricht University, Maastricht</wicri:regionArea><wicri:noRegion>Maastricht</wicri:noRegion></affiliation></author><author><name sortKey="Voshaar, Marieke" sort="Voshaar, Marieke" uniqKey="Voshaar M" first="Marieke" last="Voshaar">Marieke Voshaar</name><affiliation wicri:level="4"><nlm:affiliation>Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Psychology, Health and Technology, University of Twente, Enschede</wicri:regionArea><orgName type="university">Université de Twente</orgName><placeName><settlement type="city">Enschede</settlement><region nuts="2">Overijssel</region></placeName></affiliation></author><author><name sortKey="Zangi, Heidi A" sort="Zangi, Heidi A" uniqKey="Zangi H" first="Heidi A" last="Zangi">Heidi A. Zangi</name><affiliation wicri:level="3"><nlm:affiliation>National Advisory Unit on Rehabilitation in Rheumatology, Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>National Advisory Unit on Rehabilitation in Rheumatology, Department of Rheumatology, Diakonhjemmet Hospital, Oslo</wicri:regionArea><placeName><settlement type="city">Oslo</settlement><region nuts="2">Østlandet</region></placeName></affiliation></author><author><name sortKey="Barbosa, Lurdes" sort="Barbosa, Lurdes" uniqKey="Barbosa L" first="Lurdes" last="Barbosa">Lurdes Barbosa</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Department of Rheumatology, Hospital Garcia de Orta, Almada</wicri:regionArea><wicri:noRegion>Almada</wicri:noRegion></affiliation></author><author><name sortKey="Bostrom, Carina" sort="Bostrom, Carina" uniqKey="Bostrom C" first="Carina" last="Boström">Carina Boström</name><affiliation wicri:level="3"><nlm:affiliation>Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm</wicri:regionArea><placeName><settlement type="city">Stockholm</settlement><region nuts="2">Svealand</region></placeName></affiliation><affiliation wicri:level="3"><nlm:affiliation>Functional Area Occupational Therapy & Physiotherapy, Allied Health Professionals Function, Karolinska University Hospital, Stockholm, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Functional Area Occupational Therapy & Physiotherapy, Allied Health Professionals Function, Karolinska University Hospital, Stockholm</wicri:regionArea><placeName><settlement type="city">Stockholm</settlement><region nuts="2">Svealand</region></placeName></affiliation></author><author><name sortKey="Boteva, Boryana" sort="Boteva, Boryana" uniqKey="Boteva B" first="Boryana" last="Boteva">Boryana Boteva</name><affiliation wicri:level="3"><nlm:affiliation>Bulgarian Organisation for People with Rheumatic Diseases (BOPRD), www.revmatologia.org, Sofia, Bulgaria.</nlm:affiliation><country xml:lang="fr">Bulgarie</country><wicri:regionArea>Bulgarian Organisation for People with Rheumatic Diseases (BOPRD), www.revmatologia.org, Sofia</wicri:regionArea><placeName><settlement type="city">Sofia</settlement><region nuts="2">Sofia-ville (oblast)</region></placeName></affiliation></author><author><name sortKey="Carubbi, Francesco" sort="Carubbi, Francesco" uniqKey="Carubbi F" first="Francesco" last="Carubbi">Francesco Carubbi</name><affiliation wicri:level="1"><nlm:affiliation>Rheumatology Unit, Department of Biotechnological and Applied Clinical Science, School of Medicine, University of L'Aquila, L'Aquila, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Rheumatology Unit, Department of Biotechnological and Applied Clinical Science, School of Medicine, University of L'Aquila, L'Aquila</wicri:regionArea><wicri:noRegion>L'Aquila</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, ASL1 Avezzano-Sulmona-L'Aquila, L'Aquila, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Department of Medicine, ASL1 Avezzano-Sulmona-L'Aquila, L'Aquila</wicri:regionArea><wicri:noRegion>L'Aquila</wicri:noRegion></affiliation></author><author><name sortKey="Fayet, Francoise" sort="Fayet, Francoise" uniqKey="Fayet F" first="Françoise" last="Fayet">Françoise Fayet</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Hôpital Gabriel Montpied, Clermont-Ferrand, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Rheumatology, Hôpital Gabriel Montpied, Clermont-Ferrand</wicri:regionArea><placeName><region type="region">Auvergne-Rhône-Alpes</region><region type="old region">Auvergne (région administrative)</region><settlement type="city">Clermont-Ferrand</settlement></placeName></affiliation></author><author><name sortKey="Ferreira, Ricardo J O" sort="Ferreira, Ricardo J O" uniqKey="Ferreira R" first="Ricardo J O" last="Ferreira">Ricardo J O. Ferreira</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra</wicri:regionArea><wicri:noRegion>Coimbra</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Health Sciences Research Unit: Nursing (UICiSA:E), Nursing School of Coimbra, Coimbra, Portugal.</nlm:affiliation><country xml:lang="fr">Portugal</country><wicri:regionArea>Health Sciences Research Unit: Nursing (UICiSA:E), Nursing School of Coimbra, Coimbra</wicri:regionArea><wicri:noRegion>Coimbra</wicri:noRegion></affiliation></author><author><name sortKey="Hoeper, Kirsten" sort="Hoeper, Kirsten" uniqKey="Hoeper K" first="Kirsten" last="Hoeper">Kirsten Hoeper</name><affiliation wicri:level="3"><nlm:affiliation>Clinic for Immunology and Rheumatology, Hannover Medical School, Hannover, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Clinic for Immunology and Rheumatology, Hannover Medical School, Hannover</wicri:regionArea><placeName><region type="land" nuts="2">Basse-Saxe</region><settlement type="city">Hanovre</settlement></placeName></affiliation></author><author><name sortKey="Kocher, Agnes" sort="Kocher, Agnes" uniqKey="Kocher A" first="Agnes" last="Kocher">Agnes Kocher</name><affiliation wicri:level="1"><nlm:affiliation>Institute of Nursing Science (INS), Department of Public Health (DPH), University of Basel, Basel, Switzerland.</nlm:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>Institute of Nursing Science (INS), Department of Public Health (DPH), University of Basel, Basel</wicri:regionArea><wicri:noRegion>Basel</wicri:noRegion></affiliation><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Immunology and Allergology, Inselspital University Hospital Bern, Bern, Switzerland.</nlm:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>Department of Rheumatology, Immunology and Allergology, Inselspital University Hospital Bern, Bern</wicri:regionArea><placeName><settlement type="city">Berne</settlement><region type="région" nuts="3">Canton de Berne</region></placeName></affiliation></author><author><name sortKey="Kukkurainen, Marja Leena" sort="Kukkurainen, Marja Leena" uniqKey="Kukkurainen M" first="Marja Leena" last="Kukkurainen">Marja Leena Kukkurainen</name><affiliation wicri:level="1"><nlm:affiliation>Lahti University of Applied Sciences, Faculty of Social and Health Care, Lahti, Finland.</nlm:affiliation><country xml:lang="fr">Finlande</country><wicri:regionArea>Lahti University of Applied Sciences, Faculty of Social and Health Care, Lahti</wicri:regionArea><wicri:noRegion>Lahti</wicri:noRegion></affiliation></author><author><name sortKey="Lion, Vivienne" sort="Lion, Vivienne" uniqKey="Lion V" first="Vivienne" last="Lion">Vivienne Lion</name><affiliation wicri:level="4"><nlm:affiliation>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck, Austria.</nlm:affiliation><country xml:lang="fr">Autriche</country><wicri:regionArea>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck</wicri:regionArea><orgName type="university">Université de médecine d'Innsbruck</orgName><placeName><settlement type="city">Innsbruck</settlement><region nuts="2" type="region">Tyrol (Land)</region></placeName></affiliation></author><author><name sortKey="Minnock, Patricia" sort="Minnock, Patricia" uniqKey="Minnock P" first="Patricia" last="Minnock">Patricia Minnock</name><affiliation wicri:level="1"><nlm:affiliation>Rheumatic Musculoskeletal Disease Unit, Our Lady's Hospice and Care Services, Dublin, Ireland.</nlm:affiliation><country xml:lang="fr">Irlande (pays)</country><wicri:regionArea>Rheumatic Musculoskeletal Disease Unit, Our Lady's Hospice and Care Services, Dublin</wicri:regionArea><wicri:noRegion>Dublin</wicri:noRegion></affiliation></author><author><name sortKey="Moretti, Antonella" sort="Moretti, Antonella" uniqKey="Moretti A" first="Antonella" last="Moretti">Antonella Moretti</name><affiliation wicri:level="1"><nlm:affiliation>Clinica Reumatologica, Ospedale C. Urbani, Università Politecnica delle Marche, Jesi (An), Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Clinica Reumatologica, Ospedale C. Urbani, Università Politecnica delle Marche, Jesi (An)</wicri:regionArea><wicri:noRegion>Jesi (An)</wicri:noRegion></affiliation></author><author><name sortKey="Ndosi, Mwidimi" sort="Ndosi, Mwidimi" uniqKey="Ndosi M" first="Mwidimi" last="Ndosi">Mwidimi Ndosi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Nursing and Midwifery, University of the West of England, Bristol, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Nursing and Midwifery, University of the West of England, Bristol</wicri:regionArea><wicri:noRegion>Bristol</wicri:noRegion></affiliation></author><author><name sortKey="Pavic Nikolic, Milena" sort="Pavic Nikolic, Milena" uniqKey="Pavic Nikolic M" first="Milena" last="Pavic Nikolic">Milena Pavic Nikolic</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rhematology, University Medical Centre Ljubljana, Ljubljana, Slovenia.</nlm:affiliation><country xml:lang="fr">Slovénie</country><wicri:regionArea>Department of Rhematology, University Medical Centre Ljubljana, Ljubljana</wicri:regionArea><wicri:noRegion>Ljubljana</wicri:noRegion></affiliation></author><author><name sortKey="Schirmer, Michael" sort="Schirmer, Michael" uniqKey="Schirmer M" first="Michael" last="Schirmer">Michael Schirmer</name><affiliation wicri:level="4"><nlm:affiliation>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck, Austria.</nlm:affiliation><country xml:lang="fr">Autriche</country><wicri:regionArea>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck</wicri:regionArea><orgName type="university">Université de médecine d'Innsbruck</orgName><placeName><settlement type="city">Innsbruck</settlement><region nuts="2" type="region">Tyrol (Land)</region></placeName></affiliation></author><author><name sortKey="Smucrova, Hana" sort="Smucrova, Hana" uniqKey="Smucrova H" first="Hana" last="Smucrova">Hana Smucrova</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rehabilitation, Institute of Rheumatology, Prague, Czech Republic.</nlm:affiliation><country xml:lang="fr">République tchèque</country><wicri:regionArea>Department of Rehabilitation, Institute of Rheumatology, Prague</wicri:regionArea><placeName><settlement type="city">Prague</settlement><region type="région" nuts="2">Bohême centrale</region></placeName></affiliation></author><author><name sortKey="De La Torre Aboki, Jenny" sort="De La Torre Aboki, Jenny" uniqKey="De La Torre Aboki J" first="Jenny" last="De La Torre-Aboki">Jenny De La Torre-Aboki</name><affiliation wicri:level="1"><nlm:affiliation>Day Hospital Unit, Alicante General and University Hospital, Alicante, Spain.</nlm:affiliation><country xml:lang="fr">Espagne</country><wicri:regionArea>Day Hospital Unit, Alicante General and University Hospital, Alicante</wicri:regionArea><wicri:noRegion>Alicante</wicri:noRegion></affiliation></author><author><name sortKey="Waite Jones, Jennifer" sort="Waite Jones, Jennifer" uniqKey="Waite Jones J" first="Jennifer" last="Waite-Jones">Jennifer Waite-Jones</name><affiliation wicri:level="4"><nlm:affiliation>School of Healthcare, University of Leeds, Leeds, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>School of Healthcare, University of Leeds, Leeds</wicri:regionArea><orgName type="university">Université de Leeds</orgName><placeName><settlement type="city">Leeds</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Yorkshire-et-Humber</region></placeName></affiliation></author><author><name sortKey="Van Eijk Hustings, Yvonne" sort="Van Eijk Hustings, Yvonne" uniqKey="Van Eijk Hustings Y" first="Yvonne" last="Van Eijk-Hustings">Yvonne Van Eijk-Hustings</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, Maastricht, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, Maastricht</wicri:regionArea><wicri:noRegion>Maastricht</wicri:noRegion></affiliation></author></analytic><series><title level="j">Annals of the rheumatic diseases</title><idno type="eISSN">1468-2060</idno><imprint><date when="2020" type="published">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Arthritis (nursing)</term><term>Arthritis, Psoriatic (nursing)</term><term>Arthritis, Rheumatoid (nursing)</term><term>Education, Nursing, Continuing (MeSH)</term><term>Health Services Accessibility (MeSH)</term><term>Humans (MeSH)</term><term>Nurse's Role (MeSH)</term><term>Patient Education as Topic (MeSH)</term><term>Patient Satisfaction (MeSH)</term><term>Rheumatology (MeSH)</term><term>Specialties, Nursing (MeSH)</term><term>Spondylarthropathies (nursing)</term><term>Spondylitis, Ankylosing (nursing)</term><term>Telemedicine (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Accessibilité des services de santé (MeSH)</term><term>Arthrite (soins infirmiers)</term><term>Arthrite psoriasique (soins infirmiers)</term><term>Formation continue infirmier (MeSH)</term><term>Humains (MeSH)</term><term>Pelvispondylite rhumatismale (soins infirmiers)</term><term>Polyarthrite rhumatoïde (soins infirmiers)</term><term>Rhumatologie (MeSH)</term><term>Rôle de l'infirmier (MeSH)</term><term>Satisfaction des patients (MeSH)</term><term>Spondylarthropathies (soins infirmiers)</term><term>Spécialités en soins infirmiers (MeSH)</term><term>Télémédecine (MeSH)</term><term>Éducation du patient comme sujet (MeSH)</term></keywords><keywords scheme="MESH" qualifier="nursing" xml:lang="en"><term>Arthritis</term><term>Arthritis, Psoriatic</term><term>Arthritis, Rheumatoid</term><term>Spondylarthropathies</term><term>Spondylitis, Ankylosing</term></keywords><keywords scheme="MESH" qualifier="soins infirmiers" xml:lang="fr"><term>Arthrite</term><term>Arthrite psoriasique</term><term>Pelvispondylite rhumatismale</term><term>Polyarthrite rhumatoïde</term><term>Spondylarthropathies</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Education, Nursing, Continuing</term><term>Health Services Accessibility</term><term>Humans</term><term>Nurse's Role</term><term>Patient Education as Topic</term><term>Patient Satisfaction</term><term>Rheumatology</term><term>Specialties, Nursing</term><term>Telemedicine</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Accessibilité des services de santé</term><term>Formation continue infirmier</term><term>Humains</term><term>Rhumatologie</term><term>Rôle de l'infirmier</term><term>Satisfaction des patients</term><term>Spécialités en soins infirmiers</term><term>Télémédecine</term><term>Éducation du patient comme sujet</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory arthritis (CIA) using the most up to date evidence. The EULAR standardised operating procedures were followed. A task force of rheumatologists, health professionals and patients, representing 17 European countries updated the recommendations, based on a systematic literature review and expert consensus. Higher level of evidence and new insights into nursing care for patients with CIA were added to the recommendation. Level of agreement was obtained by email voting. The search identified 2609 records, of which 51 (41 papers, 10 abstracts), mostly on rheumatoid arthritis, were included. Based on consensus, the task force formulated three overarching principles and eight recommendations. One recommendation remained unchanged, six were reworded, two were merged and one was reformulated as an overarching principle. Two additional overarching principles were formulated. The overarching principles emphasise the nurse's role as part of a healthcare team, describe the importance of providing evidence-based care and endorse shared decision-making in the nursing consultation with the patient. The recommendations cover the contribution of rheumatology nursing in needs-based patient education, satisfaction with care, timely access to care, disease management, efficiency of care, psychosocial support and the promotion of self-management. The level of agreement among task force members was high (mean 9.7, range 9.6-10.0). The updated recommendations encompass three overarching principles and eight evidence-based and expert opinion-based recommendations for the role of the nurse in the management of CIA.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">31300458</PMID><DateCompleted><Year>2020</Year><Month>04</Month><Day>20</Day></DateCompleted><DateRevised><Year>2020</Year><Month>04</Month><Day>20</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1468-2060</ISSN><JournalIssue CitedMedium="Internet"><Volume>79</Volume><Issue>1</Issue><PubDate><Year>2020</Year><Month>01</Month></PubDate></JournalIssue><Title>Annals of the rheumatic diseases</Title><ISOAbbreviation>Ann Rheum Dis</ISOAbbreviation></Journal><ArticleTitle>2018 update of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis.</ArticleTitle><Pagination><MedlinePgn>61-68</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1136/annrheumdis-2019-215458</ELocationID><Abstract><AbstractText>To update the European League Against Rheumatism (EULAR) recommendations for the role of the nurse in the management of chronic inflammatory arthritis (CIA) using the most up to date evidence. The EULAR standardised operating procedures were followed. A task force of rheumatologists, health professionals and patients, representing 17 European countries updated the recommendations, based on a systematic literature review and expert consensus. Higher level of evidence and new insights into nursing care for patients with CIA were added to the recommendation. Level of agreement was obtained by email voting. The search identified 2609 records, of which 51 (41 papers, 10 abstracts), mostly on rheumatoid arthritis, were included. Based on consensus, the task force formulated three overarching principles and eight recommendations. One recommendation remained unchanged, six were reworded, two were merged and one was reformulated as an overarching principle. Two additional overarching principles were formulated. The overarching principles emphasise the nurse's role as part of a healthcare team, describe the importance of providing evidence-based care and endorse shared decision-making in the nursing consultation with the patient. The recommendations cover the contribution of rheumatology nursing in needs-based patient education, satisfaction with care, timely access to care, disease management, efficiency of care, psychosocial support and the promotion of self-management. The level of agreement among task force members was high (mean 9.7, range 9.6-10.0). The updated recommendations encompass three overarching principles and eight evidence-based and expert opinion-based recommendations for the role of the nurse in the management of CIA.</AbstractText><CopyrightInformation>© Author(s) (or their employer(s)) 2020. No commercial re-use. See rights and permissions. Published by BMJ.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Bech</LastName><ForeName>Bianca</ForeName><Initials>B</Initials><Identifier Source="ORCID">0000-0003-3424-2107</Identifier><AffiliationInfo><Affiliation>Center for Rheumatology and Spine Diseases, Centre of Head and Orthopaedics, Rigshospitalet - Glostrup, Glostrup, Denmark biancabech@gmail.com.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Primdahl</LastName><ForeName>Jette</ForeName><Initials>J</Initials><Identifier Source="ORCID">0000-0002-1049-4150</Identifier><AffiliationInfo><Affiliation>Danish Hospital for Rheumatic Diseases, University Hospital of Southern Denmark, Sønderborg, Denmark.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Regional Health Research, University of Southern Denmark, Odense, Denmark.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>van Tubergen</LastName><ForeName>Astrid</ForeName><Initials>A</Initials><Identifier Source="ORCID">0000-0001-8477-0683</Identifier><AffiliationInfo><Affiliation>Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, Maastricht, The Netherlands.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>CAPHRI Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Voshaar</LastName><ForeName>Marieke</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Zangi</LastName><ForeName>Heidi A</ForeName><Initials>HA</Initials><Identifier Source="ORCID">0000-0001-6882-221X</Identifier><AffiliationInfo><Affiliation>National Advisory Unit on Rehabilitation in Rheumatology, Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Barbosa</LastName><ForeName>Lurdes</ForeName><Initials>L</Initials><Identifier Source="ORCID">0000-0001-7010-5228</Identifier><AffiliationInfo><Affiliation>Department of Rheumatology, Hospital Garcia de Orta, Almada, Portugal.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Boström</LastName><ForeName>Carina</ForeName><Initials>C</Initials><Identifier Source="ORCID">0000-0002-2506-687X</Identifier><AffiliationInfo><Affiliation>Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm, Sweden.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Functional Area Occupational Therapy & Physiotherapy, Allied Health Professionals Function, Karolinska University Hospital, Stockholm, Sweden.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Boteva</LastName><ForeName>Boryana</ForeName><Initials>B</Initials><AffiliationInfo><Affiliation>Bulgarian Organisation for People with Rheumatic Diseases (BOPRD), www.revmatologia.org, Sofia, Bulgaria.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Carubbi</LastName><ForeName>Francesco</ForeName><Initials>F</Initials><Identifier Source="ORCID">0000-0003-1958-5136</Identifier><AffiliationInfo><Affiliation>Rheumatology Unit, Department of Biotechnological and Applied Clinical Science, School of Medicine, University of L'Aquila, L'Aquila, Italy.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medicine, ASL1 Avezzano-Sulmona-L'Aquila, L'Aquila, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Fayet</LastName><ForeName>Françoise</ForeName><Initials>F</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Hôpital Gabriel Montpied, Clermont-Ferrand, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ferreira</LastName><ForeName>Ricardo J O</ForeName><Initials>RJO</Initials><Identifier Source="ORCID">0000-0002-2517-0247</Identifier><AffiliationInfo><Affiliation>Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Health Sciences Research Unit: Nursing (UICiSA:E), Nursing School of Coimbra, Coimbra, Portugal.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hoeper</LastName><ForeName>Kirsten</ForeName><Initials>K</Initials><Identifier Source="ORCID">0000-0002-4327-9836</Identifier><AffiliationInfo><Affiliation>Clinic for Immunology and Rheumatology, Hannover Medical School, Hannover, Germany.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kocher</LastName><ForeName>Agnes</ForeName><Initials>A</Initials><Identifier Source="ORCID">0000-0002-8716-9727</Identifier><AffiliationInfo><Affiliation>Institute of Nursing Science (INS), Department of Public Health (DPH), University of Basel, Basel, Switzerland.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Rheumatology, Immunology and Allergology, Inselspital University Hospital Bern, Bern, Switzerland.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kukkurainen</LastName><ForeName>Marja Leena</ForeName><Initials>ML</Initials><Identifier Source="ORCID">0000-0001-6150-8252</Identifier><AffiliationInfo><Affiliation>Lahti University of Applied Sciences, Faculty of Social and Health Care, Lahti, Finland.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lion</LastName><ForeName>Vivienne</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck, Austria.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Minnock</LastName><ForeName>Patricia</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Rheumatic Musculoskeletal Disease Unit, Our Lady's Hospice and Care Services, Dublin, Ireland.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Moretti</LastName><ForeName>Antonella</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Clinica Reumatologica, Ospedale C. Urbani, Università Politecnica delle Marche, Jesi (An), Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ndosi</LastName><ForeName>Mwidimi</ForeName><Initials>M</Initials><Identifier Source="ORCID">0000-0002-7764-3173</Identifier><AffiliationInfo><Affiliation>Department of Nursing and Midwifery, University of the West of England, Bristol, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Pavic Nikolic</LastName><ForeName>Milena</ForeName><Initials>M</Initials><Identifier Source="ORCID">0000-0001-9703-0182</Identifier><AffiliationInfo><Affiliation>Department of Rhematology, University Medical Centre Ljubljana, Ljubljana, Slovenia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Schirmer</LastName><ForeName>Michael</ForeName><Initials>M</Initials><Identifier Source="ORCID">0000-0001-9208-7809</Identifier><AffiliationInfo><Affiliation>Department of Internal Medicine, Clinic II, Medical University of Innsbruck, Innsbruck, Austria.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Smucrova</LastName><ForeName>Hana</ForeName><Initials>H</Initials><Identifier Source="ORCID">0000-0001-8614-4934</Identifier><AffiliationInfo><Affiliation>Department of Rehabilitation, Institute of Rheumatology, Prague, Czech Republic.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>de la Torre-Aboki</LastName><ForeName>Jenny</ForeName><Initials>J</Initials><Identifier Source="ORCID">0000-0002-4905-2034</Identifier><AffiliationInfo><Affiliation>Day Hospital Unit, Alicante General and University Hospital, Alicante, Spain.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Waite-Jones</LastName><ForeName>Jennifer</ForeName><Initials>J</Initials><Identifier Source="ORCID">0000-0003-3996-5371</Identifier><AffiliationInfo><Affiliation>School of Healthcare, University of Leeds, Leeds, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>van Eijk-Hustings</LastName><ForeName>Yvonne</ForeName><Initials>Y</Initials><Identifier Source="ORCID">0000-0002-2325-8114</Identifier><AffiliationInfo><Affiliation>Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, Maastricht, The Netherlands.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016446">Consensus Development Conference</PublicationType><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D017065">Practice Guideline</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2019</Year><Month>07</Month><Day>12</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Ann Rheum Dis</MedlineTA><NlmUniqueID>0372355</NlmUniqueID><ISSNLinking>0003-4967</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D001168" MajorTopicYN="N">Arthritis</DescriptorName><QualifierName UI="Q000451" MajorTopicYN="N">nursing</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D015535" MajorTopicYN="N">Arthritis, Psoriatic</DescriptorName><QualifierName UI="Q000451" MajorTopicYN="Y">nursing</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D001172" MajorTopicYN="N">Arthritis, Rheumatoid</DescriptorName><QualifierName UI="Q000451" MajorTopicYN="Y">nursing</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D004509" MajorTopicYN="N">Education, Nursing, Continuing</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006297" MajorTopicYN="N">Health Services Accessibility</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D024802" MajorTopicYN="Y">Nurse's Role</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010353" MajorTopicYN="N">Patient Education as Topic</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D017060" MajorTopicYN="N">Patient Satisfaction</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012219" MajorTopicYN="Y">Rheumatology</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D013041" MajorTopicYN="N">Specialties, Nursing</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D025242" MajorTopicYN="N">Spondylarthropathies</DescriptorName><QualifierName UI="Q000451" MajorTopicYN="N">nursing</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D013167" MajorTopicYN="N">Spondylitis, Ankylosing</DescriptorName><QualifierName UI="Q000451" MajorTopicYN="Y">nursing</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D017216" MajorTopicYN="N">Telemedicine</DescriptorName></MeshHeading></MeshHeadingList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="Y">arthritis</Keyword><Keyword MajorTopicYN="Y">health services research</Keyword><Keyword MajorTopicYN="Y">nursing</Keyword><Keyword MajorTopicYN="Y">patient perspective</Keyword><Keyword MajorTopicYN="Y">rheumatoid arthritis</Keyword></KeywordList><CoiStatement>Competing interests: None declared.</CoiStatement></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2019</Year><Month>03</Month><Day>29</Day></PubMedPubDate><PubMedPubDate PubStatus="revised"><Year>2019</Year><Month>06</Month><Day>08</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2019</Year><Month>06</Month><Day>23</Day></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2019</Year><Month>7</Month><Day>14</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2020</Year><Month>4</Month><Day>21</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2019</Year><Month>7</Month><Day>14</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">31300458</ArticleId><ArticleId IdType="pii">annrheumdis-2019-215458</ArticleId><ArticleId IdType="doi">10.1136/annrheumdis-2019-215458</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Allemagne</li><li>Autriche</li><li>Bulgarie</li><li>Danemark</li><li>Espagne</li><li>Finlande</li><li>France</li><li>Irlande (pays)</li><li>Italie</li><li>Norvège</li><li>Oman</li><li>Pays-Bas</li><li>Portugal</li><li>Royaume-Uni</li><li>République tchèque</li><li>Slovénie</li><li>Suisse</li><li>Suède</li></country><region><li>Angleterre</li><li>Auvergne (région 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first="Jette" last="Primdahl">Jette Primdahl</name></country><country name="Pays-Bas"><noRegion><name sortKey="Van Tubergen, Astrid" sort="Van Tubergen, Astrid" uniqKey="Van Tubergen A" first="Astrid" last="Van Tubergen">Astrid Van Tubergen</name></noRegion><name sortKey="Van Eijk Hustings, Yvonne" sort="Van Eijk Hustings, Yvonne" uniqKey="Van Eijk Hustings Y" first="Yvonne" last="Van Eijk-Hustings">Yvonne Van Eijk-Hustings</name><name sortKey="Van Tubergen, Astrid" sort="Van Tubergen, Astrid" uniqKey="Van Tubergen A" first="Astrid" last="Van Tubergen">Astrid Van Tubergen</name><name sortKey="Voshaar, Marieke" sort="Voshaar, Marieke" uniqKey="Voshaar M" first="Marieke" last="Voshaar">Marieke Voshaar</name></country><country name="Norvège"><region name="Østlandet"><name sortKey="Zangi, Heidi A" sort="Zangi, Heidi A" uniqKey="Zangi H" first="Heidi A" last="Zangi">Heidi A. 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